Today was the day! The dreaded IEP meeting for Munchie! My stomach was in knots all morning before I got there...I was feeling very intimidated having to present myself and speak in front of all of these professionals...it was finally over!
I walked away feeling pretty good though, it went much better than I had anticipated! I truly believed I was going to have to battle my way through all of this, and for the most part I found that they agreed with me on almost every aspect of my concerns! :)
Next Wednsday, when Munchie would normally be receiving therapy, they will be evaluating him for Social-Emotional skills...due to his melt down the other day, they think he may need more opportunity to be involved with some other kids his age. If this evaluation goes as planned and we get the results we are expecting, he will qualify for 4 days a week in the classroom...which at first I was concerned about simply because I thought that if we did that, he would only receive group therapy, which is NOT what you want for a child with CAS! After questioning them on this I was relieved to hear that instead he would actually be removed from the classroom for an hour each day for indivualized 1 on 1 therapy with the SLP!!! That means that, out of the 5 hours a week he needs, he would get 4 of them right here, close to home, and I would only need to take him to the other SLP (45 minutes away from us) once a week!!!!!!! :)
I also mentioned the fact that I felt it was necessary that I be allowed to sit in on the sessions, at least some of them! Patty, the SLP said that she agreed, and that from now on I will be in there with them! I had printed out a lot of info I got from the Apraxia Kids website specifically for SLP's who do not know much about Apraxia, I told her that I was unsure of how much experience she has with this disorder, and how much she knows about it, and that I decided to give this to her so that she could learn more about how to best take care of my son's needs. She thanked me and said that any info I can give her is more than welcome...that made me feel much better! We need an SLP who will advocate for us also...I may be his biggest and strongest advocate...but I am NOT his only one!
I will update this as soon as I find out more from the evaluation on Wednsday and whether or not he will qualify for extended services...Please keep us in mind during your prayers...we sure can use them! :)
Showing posts with label CAS. Show all posts
Showing posts with label CAS. Show all posts
Friday, September 5, 2008
Tuesday, July 15, 2008
What Childhood Apraxia of Speech means to me!
January 22, 2005 my perfect baby boy was born! The youngest of three, I thought I knew it all...and was extremely confident in my abilities as a mom! That was then...this is now...3 and a half years later!
When my son was 2 months old he was hosplitalized with Pnuemonia, more than one time...it seemed that for the next year or so he was sick all the time, we later discovered that he has Asthma and that had caused quite a bit of trouble in that first year! Needless to say, I didn't pay much attention to other developmental issues with him until the breathing problems were somewhat resolved! But thinking back now, I should have known that something wasn't quite right long ago! You see, my son never really babbled and cooed like "normal" babies do, and I guess I just assumed it was from being attached to a nebulizer or at the worst of times a breathing machine that kept him from making those sounds. I didn't begin to worry until he was almost 2 years old and could only say "ma" not mama...just MA! Not only was that the only word in his vocabulary, it was also the only "sound" he was able to use consistently! Late talker...right? I know that's an easy one...or so some may think!!!
I began to question his speech ability, and inquired with his pediatrician about this, from whom I got "He's fine...don't worry mom...he's just a "late talker" is all...in a few months you'll be wishing he couldn't talk anymore!" HA...not so much!!! People would like to assume, and have (and still do) that he is so far behind in his expressive language (my boy is extremely intelligent, and understands everything that is said to him) because he lives in a bilingual household! Not true!!! I finally obtained an evaluation for him in December of 2007 by the school district where they determined he is severely delayed in expressive speech (well no duh...I could have told you that much!) and another evaluation last month by a certified SLP (Speech and Language Pathologist) who specializes in CAS...better known as Childhood Apraxia of Speech or Developmental Apraxia OR Dyspraxia...no matter what you call it, it's all the same thing!!! We'll get to that in a minute!) She diagnosed him with Severe Apraxia, with severe expressive language delay!
What is Apraxia???
Hmmmm....good question, and I cannot tell you exactly what it is or what causes it (noone to my knowledge can tell you what causes it unless it is aquired ie; caused by trauma to the brain!) What I can tell you is that someone with Apraxia is NOT menatlly impaired in any way. My son and others like him, know exactly what they want to say they are just unable to get it out! That in turn causes frustration levels to sky rocket...think about a time you have had larangitis and you are unable to talk, and have something very important to say...it would be extremely frustrating, am I right? Well, you would at the very least be capable of writing your needs or wants down (you're reading this so I know you can read and write;0)!) But for a child with Apraxia, it's much more difficult to communicate! That frustration is taken out in many forms...hitting, biting, hair pulling...constant tantrums. And believe me, having 2 older children I know that this applies to all kids but for my Apraxic son...it is much more often and severe!
The best thing we have done thus far is to learn and teach our son basic sign language...just enough to get by at least with us, for instance the signs for eat, drink, more, please and thank you...he uses these often, and they have helped in so many ways...not only can he let us know these things now, but using hand gestures like signs improves their ability to litterally "speak" or articulate (articulation or the lack of ability to articulate a sound or sounds is exactly what Apraxia of speech is!) those words! I suggest all new mom's begin using basic signs with their babies, it's a win-win no matter how you look at it! Imagine being able to communicate with your 6 month old and them be able to "tell" you they are hungry or sleepy!!! How can you lose??!!
What you should do if you think your child is lagging in speech!!
First and foremost ask their doctor....if they just blow you off like ours did, make an appointment with an SLP or your local school district, if your child is under the age of three you can have them evaluated by an early intervention program! Ask around! I definitely suggest going to www.apraxia-kids.org this website has been of more help than anything else, and the support system is AWESOME!!!
If your child has been diagnosed with CAS, I wish you the best of luck...it is a very slow going, emotional process! It requires a lot of time, effort, and patience from all involved! If you have any questions about anything here...let me know!
~Jenn
When my son was 2 months old he was hosplitalized with Pnuemonia, more than one time...it seemed that for the next year or so he was sick all the time, we later discovered that he has Asthma and that had caused quite a bit of trouble in that first year! Needless to say, I didn't pay much attention to other developmental issues with him until the breathing problems were somewhat resolved! But thinking back now, I should have known that something wasn't quite right long ago! You see, my son never really babbled and cooed like "normal" babies do, and I guess I just assumed it was from being attached to a nebulizer or at the worst of times a breathing machine that kept him from making those sounds. I didn't begin to worry until he was almost 2 years old and could only say "ma" not mama...just MA! Not only was that the only word in his vocabulary, it was also the only "sound" he was able to use consistently! Late talker...right? I know that's an easy one...or so some may think!!!
I began to question his speech ability, and inquired with his pediatrician about this, from whom I got "He's fine...don't worry mom...he's just a "late talker" is all...in a few months you'll be wishing he couldn't talk anymore!" HA...not so much!!! People would like to assume, and have (and still do) that he is so far behind in his expressive language (my boy is extremely intelligent, and understands everything that is said to him) because he lives in a bilingual household! Not true!!! I finally obtained an evaluation for him in December of 2007 by the school district where they determined he is severely delayed in expressive speech (well no duh...I could have told you that much!) and another evaluation last month by a certified SLP (Speech and Language Pathologist) who specializes in CAS...better known as Childhood Apraxia of Speech or Developmental Apraxia OR Dyspraxia...no matter what you call it, it's all the same thing!!! We'll get to that in a minute!) She diagnosed him with Severe Apraxia, with severe expressive language delay!
What is Apraxia???
Hmmmm....good question, and I cannot tell you exactly what it is or what causes it (noone to my knowledge can tell you what causes it unless it is aquired ie; caused by trauma to the brain!) What I can tell you is that someone with Apraxia is NOT menatlly impaired in any way. My son and others like him, know exactly what they want to say they are just unable to get it out! That in turn causes frustration levels to sky rocket...think about a time you have had larangitis and you are unable to talk, and have something very important to say...it would be extremely frustrating, am I right? Well, you would at the very least be capable of writing your needs or wants down (you're reading this so I know you can read and write;0)!) But for a child with Apraxia, it's much more difficult to communicate! That frustration is taken out in many forms...hitting, biting, hair pulling...constant tantrums. And believe me, having 2 older children I know that this applies to all kids but for my Apraxic son...it is much more often and severe!
The best thing we have done thus far is to learn and teach our son basic sign language...just enough to get by at least with us, for instance the signs for eat, drink, more, please and thank you...he uses these often, and they have helped in so many ways...not only can he let us know these things now, but using hand gestures like signs improves their ability to litterally "speak" or articulate (articulation or the lack of ability to articulate a sound or sounds is exactly what Apraxia of speech is!) those words! I suggest all new mom's begin using basic signs with their babies, it's a win-win no matter how you look at it! Imagine being able to communicate with your 6 month old and them be able to "tell" you they are hungry or sleepy!!! How can you lose??!!
What you should do if you think your child is lagging in speech!!
First and foremost ask their doctor....if they just blow you off like ours did, make an appointment with an SLP or your local school district, if your child is under the age of three you can have them evaluated by an early intervention program! Ask around! I definitely suggest going to www.apraxia-kids.org this website has been of more help than anything else, and the support system is AWESOME!!!
If your child has been diagnosed with CAS, I wish you the best of luck...it is a very slow going, emotional process! It requires a lot of time, effort, and patience from all involved! If you have any questions about anything here...let me know!
~Jenn
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